Sunday, March 3, 2013

Blogging Her Life With Cancer - NYTimes.com

When I called on readers to submit the blogs they loved for the Motherlode blogroll, one name came up more than any other: Lisa B. Adams. And I can understand why. The best personal blogs come from people on a journey through something that is as intense as anything they?ve ever experienced, and Lisa is on a journey none of us want to be on. She has breast cancer, and last fall she learned that the cancer had metastasized to her bones, becoming Stage 4 breast cancer.

It?s hard for me not to resort to clich?s in talking about Lisa?s blog ? to say things like ?she?s taking it one day at a time? and ?she?s playing the hand she was dealt.? I suspect that those clich?s are an excellent way to distance myself from her experience. But it is Lisa?s gift that she does not allow that distance between herself and the reader. She has a directness that draws you in, and she tells her story in a way that is never maudlin. It?s just ? her story. It could be anyone?s, but it?s hers, and she?s willing to simply tell us how it is to be her.

I wrote Lisa, and asked her to tell us how her blog began and what it means to her, and to describe a few of her favorite posts.

From Lisa:

I probably started blogging in the reverse order many people do. Rather than it mattering intensely to me and then later realizing it mattered to others, I started by doing it for others and then realized how much it was part of me.

I?ll explain a bit. When you have had cancer and are one of the first ones to have it, you become the reference point as others are diagnosed. ?Oh, Lisa had breast cancer? you should talk to her. Do you know her?? This is a natural branching out of social circles based on disease.

As a person who gets asked for advice all the time (most frequently about medical information), I was asked repeatedly for advice about cancer and how to help people who had friends or relatives who were diagnosed. Once I started writing informative pieces to share with them and saw their reactions, I realized I filled a void in the cancer blogging community at that time. As a result, my interactions with readers and the writing process itself became fulfilling in a way that my prior academic work never had.

I strive in my writing not to always focus on cancer per se. A few of my posts are, in fact, technical updates on my condition. These are the posts I like writing the least. I focus on the emotions of cancer ? the disease itself is not usually what?s important. Instead, what I try to focus on are the emotions that accompany these hardships: fear, anger, despair, hope, grief, love.

A few of my favorite posts:

?These Things Are Not Tied With a Pink Ribbon? is an emotional reaction to Breast Cancer Awareness Month and details why I think those campaigns don?t relate to me.


?If You Knew Suzy, If You Knew Me? is a reaction piece to the Wall Street Journal reporter Katie Rosman?s book about her mother?s life, ?If You Knew Suzy.? This piece is special because it really explores the very reasons why I write. If you want to know why I do what I do, you need only read this piece. I write to be known. I write to be understood. I fear others won?t be able to do that for me, I must do it for myself. In the process, I?ve found that others can learn and grow. I am glad that we all can do that together, even if the circumstances are not the ones I want.

?The Hardest Conversation? (published in The Huffington Post) details a long talk I had with my oldest child (age 14) shortly after I received the news that my cancer had metastasized. I think one of the reasons people like to read my blog is that they want a window into a family where difficult topics are discussed openly and honestly. We are a society which often does not treat children as if they can handle illness, death and tragedy. I believe teaching children coping skills is one of the most important things I can do as a parent. This piece has been one of the most personal and important ones I?ve written.

Some parents feel their job is to protect their children. I believe protection should not equate with hiding information. To me, protecting means educating them how to deal with what the difficult things life hands them.

?To My Dearest Children? talks about some of the joys of parenting and explains to them that being their mom is the best thing I?ve ever done. It?s the one job I haven?t quit, and the role I think I do best.

You can find Lisa?s blog here, and soon on the Motherlode blogroll, which will appear in the sidebar just as soon as I?ve welcomed a few more blogs. That main blogroll will be short, strong and as broad as I can make it. We?ll also be adding a page of resources ? blogs and other sites you can look to for specific topics or to find some new reads. I?ll keep that as current as possible ? so if you ever click through to a dead or abandoned blog, let me know.

And on that note ? you can let me know easily. I?ve had people send me their blogs to read in all sorts of ways these past few weeks! I read nearly every comment to the Motherlode blog, and you can e-mail me just by clicking on the link in my bio. Really. It?s just my e-mail address. I can?t answer every e-mail, but I do read them, and there?s nobody between me and that in-box other than a somewhat unpredictable spam filter. So if you want to get in touch, just click.


Source: http://parenting.blogs.nytimes.com/2013/03/01/blogging-her-life-with-cancer/

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